ebevents

Upcoming
EB EVENTS

Jonah's EB Auction

Jonah's EB Auction is a fundraiser to raise money for EB research and family advocacy. All proceeds will go directly to DebRA (http://www.debra.org/). The auction will run from February 23-27. For more info on bidding and how payments will be made, go here.

**UPDATE** The auction raised over $9,000!!!

2010 Patient Care Conference

DebRA's 2010 Patient Care Conference is taking place from Wednesday June 16, which is registration day, with Thursday the 17th and Friday the 18th as the main conference days, through Saturday the 19th as the final conference half day and wrap up.

The conference and all related activities will be held at the Hyatt Regency Cincinnati, 151 West Fifth Street. We have negotiated a room rate of $99.00 per room. Refrigerators are free on a first come basis and must be asked for when you make your reservation, any other special needs should also be requested at that time. So go ahead and make your travel plans. Hotel reservation details will be posted early next week when we have all of the links set up. We have lots of rooms in our block so please please don't make reservations until we get booking instructions.

It is going to be a great PCC with great speakers, interesting topics, meeting up with old friends and making new ones. Our host, historic Cincinnati offers many interesting family activities, museums, shopping, baseball games, a zoo and lots of places to go for good food and to meet the friendly people of Ohio.