UPDATED: 7/11/08

EB in the news, on TV and in print!

JULY 7/11/08: Mother's resolve leads to medical breakthrough at U of M 7/11/08: Baby girl needs help for skin disease 7/11/08: Stem cells apparently cure boy’s fatal disease 7/11/08: Stem cells may be Folsom toddler's best hope against deadly skin disease 7/11/08: Papa John's to help fund teen's treatment 7/11/08:Family of Folsom girl with skin disease launches research fund 7/11/08: Mother reveals amazing daily struggle of fragile Butterfly Girl 7/11/08: Folsom infant dies before marrow transplant 7/11/08: Cotton wool kid Joshua Gibson in pain

May 5/30/08: Butterfly girl losing her fight for life 5/30/08: Butterfly child given new lease of life 5/30/08: Coyotes Assist Two Children Inflicted with Epidermolysis Bullosa 5/30/08: Health: Handle with care 5/30/08: Living a delicate childhood 5/30/08: Donor Match Found for Teen With Skin Disease 5/30/08: Teen organizes concert for 'butterfly children' 5/30/08: Students Depart on Fundraising Bike Trek 5/14/08: Newtown groups launch effort to help 'happy' boy 5/14/08: Laugh lines to make life brighter for Scott 5/13/08: BYU students riding for a cause 5/4/08: Benefit sure to spawn hair-razing tales 5/4/08: Family benefit planned 5/4/08: Our battle to help others, by parents of Butterfly baby James 5/4/08: Keysborough child's badge of honour 5/4/08 : EB On Dr. Phil 5/4/08: Ridgefield rallies around 11-year-old 5/4/08: EB fight in memory of brave Aaron

June 6/3/08: Local non-profit steps up to help woman with rare medical condition 6/3/08: Long-shot stem-cell treatment gives two brothers a future 6/3/08: A mother's gamble pays off: Tot with rare disorder is healing

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April 4/1/08The painful life of Cody Cordellos 4/1/08: Celebs create charity cards 4/1/08: Stiefel Laboratories Joins Hollywood A-Listers in Support of Epidermolysis Bullosa Medical Research Foundation 4/1/08: Article in People Magazine 4/1/08: News from Camp Wonder 4/8/08: Teen recognized for research 4/8/08: 18-year-old battles deadly skin disease with help from Hollywood friends 4/8/08: "Walk a mile in their shoes"

February 2/6/08: Skin disorder kills second twin dies in mother's arms. Local boys' uncle saddened and angered 2/8/08: Call goes out to help Liberty family 2/28/08: A Mother's Will 2/28/08: A Student Helps In Family's Medical Hardships 2/28/08: Benefit Raises Funds For Baby With Rare Disease

January 1/30/07: Family of babies with skin disorder finds support 1/29/07:Unbearable, incurable skin disease strikes kids 1/6/08: Tough on the inside: Girl, 6, fights for normal life

March 3/25/08: Jen Aniston, Courteney Cox Team Up for Kids Cause