On-Line Epidermolysis Bullosa Support Groups

EB Families: This is a support group for individuals, parents, and families with Epidermolysis Bullosa

The National EB Society: All forms of EB welcome

Epidermolysis Bullosa Friends A Different Kind of EB Group

EB Zone: This list is made to bring Epidermolysis Bullosa parents, patients and anyone interested in learning more about EB together as an informational and supportive

EB Database: A database of EB families who are willing to speak with other EB families.

Junctional EB: For those effected by all forms of Junctional EB

Parents and Children with EB: A group for parents who have EB and also have children with EB

RDEB WORLD: For those effected by RDEB

DDEB: For those effected by Dominant Dystrophic EB

EB Women: For women 18 and older effected by all forms of EB

EB Info World: A wealth of resources about all forms of EB

EB Angels: For those who have lost a loved one to EB

RDEB Adults: Adults over the age of 18 effect by all forms of RDEB

EB Force for Action: All types and subtypes of EB are welcome

EB Simplex: For those effected by all forms of EB Simplex

EB Teens: Teens ages 13-19 effected by any form of EB welcome to join

Positive EB Parenting: This group is for parents who do not have epidermolysis bullosa but who do have a child or children with this rare skin disorder

EB en español: An EB Spport group completely in Spanish!

State Support Groups On-Line

EB Philly: For those in the greater Philly area

EB Califorina

Epidermolysis Bullosa of New England

EB Florida: For those in Florida/Southern Georgia

EB Indiana: For those in the state of Indiana

DebRA of North Carolina: An EB support group for those in North Carolina

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