Visit Epidermolysis Bullosa Friends
EB Yahoo Groups: just search for “epidermolysis bullosa” and all the EB groups should come up.
DebRA: Dystropic Epidermolysis Bullosa Research of America: the only national non-profit organization dedicated to both promoting research to find new treatments and a cure for Epidermolysis Bullosa and providing information and support for people with EB and their families
The EBMRF is a volunteer nonprofit foundation dedicated to the support of medical research of Epidermolysis Bullosa (EB), its causes, the development of successful treatments, and ultimately, its cure.
United Survivors with EB: Our mission is to help people with EB become more self reliant.
Epidermolysis Bullosa Action Network: The Epidermolysis Bullosa (“EB”) Action Network is a nonprofit charitable organization committed to accomplishing the following objective: To improve the financial quality and emotional stability of EB families.
Befriend EB: making life bearable
Kisses for Katie is a Not-For-Profit, Tax-Exempt Organization under IRC Sect 501(c)3, whose purpose is to raise the necessary funds for EB patients care, and to educate the public on the genetic disorder Epidermolysis Bulosa or EB
Wayne-Westland Friends of EB:
To support the needs of families in the
greater Wayne- Westland area who have EB (Epidermolysis Bullosa), to promote EB awareness and education, and to encourage those searching for a cure
Other Useful Links
National Rehab: A wonderful wound care product supplier!!
Hollister Wound Care- maker of the new Restore Contact Layer would care dressing, great for those with EB. *NEW*
Direct Medical's web site. A medical supply company to get wound care bandages, such as mepitel and meplix.
The company that makes Mepitel and Mepliex products.
On-line Textbook of Dermatology
International EB Forum
DebRA of the Netherlands
Debra International
Debra of Ireland
Debra of Queensland
DebRA Australia
Debra of the UK.
DebRA of Italy
Debra of Canada
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